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Wednesday, July 15
Dates set for Golf and Dinner Dance
The Eighth Annual Michael Bartone Memorial Golf Tournament will be held on Friday September eleventh, once again at Arrowhead Golf Course. The following evening our Dinner Dance, hosted by Luigi & Giovanni at Saint Anthony's Lodge in Downingtown, will take place. Tickets will not be available at the door.
As we plan for these events it is with the knowledge that the expected proceeds will help us surpass the two hundred fifty thousand dollar mark in our support of our partner in the ALS Fight, the Greater Philadelphia Chapter of the ALS Association. Additionally, over sixty thousand dollars have been allocated to the Scholarship Fund which has awarded eight annual grants and remains funded through 2021.
To join our Sponsor family or obtain information on attending our events please contact the Michael Bartone Memorial, 1961 Goldenridge Drive, Downingtown, PA 19335. Stay tuned for more news on our events.
"His battle is not lost unless we quit"
Wednesday, February 18
Foundation holds seventh Scrum for Six
On Saturday May 9th, 2009, the seventh annual Michael Bartone Memorial Rugby Tournament will be held at the home pitch of the Brandywine Rugby Football Club in West Marlborough, Pennsylvania. In recognition of the number Michael wore during his fourteen year career, the Scrum for Six, as the Event is called, was started in 2003 following his death.
In the later stages of his career with Brandywine, Michael began to experience some physical changes. He thought that the tingling in his extremities was due to the many nerve-jarring tackles that he made during his football and rugby careers. Maybe they were related to the more tedious motions of his profession of plumber. As his character dictated, he played and worked through the pain, never complaining and continuing to perform at his customary high level. He continued to play Rugby until his body would no longer allow. His visits to the pitch after that took all of his courage. It was in 1999 when Michael Bartone finally learned that the degradation of his body was due to Amytrophic Lateral Sclerosis or ALS.
ALS, more commonly referred to as Lou Gehrig’s Disease, affects approximately 30,000 Americans at any one time. 5600 new patients are diagnosed in the U. S. each year. It is a disease that attacks the Central Nervous System, limiting the ability to control muscles. Twenty percent of the patients die within three years of their diagnosis.
Michael died in March 2002, during his battle with the disease. Shortly after his death, a Memorial Foundation was formed to accomplish three key goals, carry on his battle with ALS, preserve his memory and continue his unselfish inspiration. As we consider the rather humble beginnings of the Scrum for Six, when in 2003 we struggled to get two teams to play. From the week long prediction of rain from every forecaster in any media, to the solitary figures arranging and preparing the pitch that Friday, we are inspired to see what the Scrum for Six has become. We can still remember, early that first Saturday morning, a surprised television weather reporter explaining what had happened to the guaranteed storm he had predicted the evening before. “You may wonder what happened to the storm”, he said. “Well an impressive, intense, strong willed high pressure system came from the north and pushed it out to sea.” We knew then, that was no high pressure system, Mr. Murphy. Our venue now has a full day, with a wide range of Rugby for all. The Old Boys, most former mates of Mike and still strong, anchor the Scrum and the alliance with South Jersey has become a trademark. A side, with a whole new generation of Ruggers building awareness of Michael’s spirit and ensuring that Brandywine RFC and the fight against ALS remain linked. The Brandywine Ladies are a key part of the day now, with the women rounding out the event in a full spectrum of Rugby fun. And the spectators, many long standing friends, some of whom only see each other on this day. Looking out over the pitch now, the founders, family and Committee realize how far this has come. In 2008, over 500 spectators and players enjoyed a day full of Rugby fun for all genders and all ages. Thanks to the support of our Players, Sponsors and other contributors, another fifteen thousand dollars were raised for the fight against ALS and the Scholarship Fund. The Rugby Events have now raised over seventy eight thousand dollars. Special thanks goes to key sponsors, Land Hope Farms, Champs, the Whip Tavern and H&H Landscaping, without whom the day would not be possible. To date, including the annual golf outing and dinner dance, the group has raised over three hundred thousand dollars in total. Over two hundred thirty five thousand has been donated to the Greater Philadelphia Chapter of the ALS Association in Michael’s name. Additionally, seven students have received scholarships totaling twenty thousand five hundred dollars and over forty thousand dollars are invested in a trust fund for future awards. While the matches and the money raising are important aspects of the Scrum for Six, the true importance of this Saturday in May and the Rugby Event is the kinship and the celebration of Michael’s life by those that were closest to him. While the group also holds a golf outing, a dinner and a dance as was already mentioned, there is no activity closer to Mike than Rugby and no group closer to him than these mates, the close friends in attendance, the Committee and his family. To look out over the pitch on that sunny Saturday, view the crowd of all ages, some of whom only see each other on this day, provides the event coordinators with the clear reason for their hard work in orchestrating the Scrum for Six every year.
Friday, June 27
Sixth Scrum for Six
On Saturday May 10th, 2008, the sixth annual Michael Bartone Memorial Rugby Tournament was held at the home pitch of the Brandywine Rugby Football Club in West Marlborough, Pennsylvania. In recognition of the number Michael wore during his fourteen year career, the Scrum for Six, as the Event is called, was started in 2003 following his death. This year, since six is so close to our hearts, the “sixth six” has very special meaning to us. Six to the sixth power, a formula sure to beat ALS.
As we consider our rather humble beginnings, when in 2003 we struggled to get two teams to play and the week long prediction of rain from every forecaster in any media, to the solitary figures arranging and preparing the pitch that Friday, we are inspired to see what the Scrum for Six has become. We can still remember, early that first Saturday morning, a surprised television weather reporter, explaining what had happened to the guaranteed storm he had predicted the evening before. “You may wonder what happened to the storm”, he said. “Well an impressive, intense, strong willed high pressure system came from the north and pushed it out to sea.” We knew then, that was no high pressure system, Mr. Murphy. Our venue now has a full day, with a wide range of Rugby for all. The Old Boys, most former mates of Mike and still strong, anchor the Scrum and the alliance with South Jersey has become a trademark. A side, with a whole new generation of Ruggers building awareness of Michael’s spirit and ensuring that Brandywine RFC and the fight against ALS remain linked. The Brandywine Ladies are a key part of the day now, with the women rounding out the event in a full spectrum of Rugby fun. And the spectators, many long standing friends, some of whom only see each other on this day. Looking out over the pitch now, the founders, family and Committee realize how far this has come.
In 2008, over 500 spectators and players enjoyed a day full of Rugby fun for all genders and all ages. Thanks to the support of our Players, Sponsors and other contributors, another fifteen thousand dollars were raised for the fight against ALS and the Scholarship Fund. The Rugby Events have now raised over seventy eight thousand dollars. Special thanks goes to key sponsors, Land Hope Farms, Champs, the Whip Tavern and H&H Landscaping, without whom the day would not be possible. To date, including the annual golf outing and dinner dance, the group has raised over two hundred seventy four thousand dollars in total. Over two hundred eleven thousand has been donated to the Greater Philadelphia Chapter of the ALS Association in Michael’s name. Additionally, seven students have received scholarships totaling twenty three thousand dollars and over forty thousand dollars are invested in a trust fund for future awards.
While the matches and the money raising are important aspects of the Scrum for Six, the true importance of this Saturday in May and the Rugby Event is the kinship and the celebration of Michael’s life by those that were closest to him. While the group also holds a golf outing, a dinner and a dance as was already mentioned, there is no activity closer to Mike than Rugby and no group closer to him than these mates, the close friends in attendance, the Committee and his family. To look out over the pitch on that sunny Saturday, view the crowd of all ages, some of whom only see each other on this day, provides the event coordinators with the clear reason for their hard work in orchestrating the Scrum for Six every year.
Friday, January 25
Sixth Scrum for Six Date Set
The Sixth Annual Scrum for Six Rugby Event will be held on Saturday May 10th, 2008. The Brandywine Rugby Football Club will host this day of Rugby at their home pitch in East Marlborough, Pennsyvania. The featured Old Boy match will once again pit Brandywine against visiting South Jersey in what has become a seasonal rivalry. This will represent the fifth year that, while competing against each other, the two clubs have joined forces to fight ALS in Michael's name. A-Side and Women's matches will also be featured with Brandywine versus to yet to be named clubs.
Tuesday, May 22
Fifth Annual Scrum for Six Rugby Event
On Saturday May 5th, 2007, the fifth annual Michael Bartone Memorial Rugby Tournament was held at the home pitch of the Brandywine Rugby Football Club in West Marlborough, Pennsylvania. In recognition of the number Michael wore during his fourteen year career, the Scrum for Six, as the Event is called, was started in 2003 following his death.
He thought that the tingling in his extremities was due to the many nerve-jarring tackles that he made during his football and rugby careers. Maybe they were related to the more tedious motions of his profession of plumber. As his character dictated, he played and worked through the pain, never complaining and continuing to perform at his customary high level. He continued to play Rugby until his body would no longer allow. His visits to the pitch after that took all of his courage. It was in 1999 when Michael Bartone finally learned that the degradation of his body was due to Amytrophic Lateral Sclerosis or ALS.
ALS, more commonly referred to as Lou Gehrigs Disease, affects approximately 30,000 Americans at any one time. 5600 new patients are diagnosed in the U. S. each year. It is a disease that attacks the Central Nervous System, limiting the ability to control muscles. Twenty percent of the patients die within three years of their diagnosis.
Michael died in March 2002, during his battle with the disease. Shortly after his death, a Memorial Foundation was formed to accomplish three key goals, carry on his battle with ALS, preserve his memory and continue his unselfish inspiration. The concept of a Rugby event was the vision of Ray OMalley, who has helped lead the organizing efforts for all five years.
Over 500 spectators and players enjoyed a day full of Rugby fun for all genders and all ages. Thanks to the support of our Players, Sponsors and other contributers, another fourteen thousand dollars were raised for the fight against ALS and the Scholarship Fund. Special thanks goes to key sponsors, Land Hope Farms, Dogfish Head Craft Brewery and H&H Landscaping, without whom the day would not be possible. To date, including the annual golf outing and dinner dance, the group has raised over two hundred fifteen thousand dollars in total. Over one hundred sixty thousand has been donated to the Greater Philadelphia Chapter of the ALS Association in Michaels name. Additionally, six students have received scholarships totaling eighteen thousands dollars and over thirty six thousand five hundred dollars are invested in a trust fund for future awards.
The morning started with the Brandywine Old Boys in what has now become an annual match with the South Jersey Old Boys. Sparked by the return of Ron Fuchs and their captain, Joe Doc Cresenz, the leadership of Fred Gordon and the play of Ed Connors, Joe Myers, Dave Sawhill, Dave Wolfe and the match MVP Carl Hall, the Brandywine team prevailed in an exciting match won by a late try. Smedley Sharp once again excelled as Touch Judge.
In the second match, the Brandywine A Side squared off against North Penn. Fresh from their playoff run, and still in top form, Brandywine won handily. Perhaps more reflective of the day, a new generation of players, many of whom did not know Michael, were made aware of the true meaning of the day with an inspirational perspective from Chris Vely.
For the second year, the Brandywine Womens Team was a key part of the day of Rugby. The women squared off against the Team from Doylestown. Although they suffered a loss in the match, the ladies support of the Event started back in January and they were an important part in the success of the day.
While the matches and the money raising are important aspects of the Scrum for Six, the true importance of the first Saturday in May and the Rugby Event is the kinship and the celebration of Michaels life by those that were closest to him. While the group also holds a golf outing, a dinner and a dance as was already mentioned, there is no activity closer to Mike than Rugby and no group closer to him than these mates, the close friends in attendance, the Committee and his family. To look out over the pitch on that sunny Saturday, view the crowd of all ages, some of whom only see each other on this day, provides the event coordinators with the clear reason for their hard work in orchestrating the Scrum for Six every year.
Fifth Annual Scrum for Six Rugby Event
On May 5th, 2007, the Fifth Annual Scrum for Six Rugby Event will be held. Co-hosts Brandywine RFC and Glen Mills League Team are proud to have South Jersey RFC, North Penn RFC and the Fairfax Eagles join in men's play again this year. Old Boys and A side will be featured in Union play with the Eagles and Panthers sqauring off in a League match. Following on the great success from 2006, there will again be a women's match as the Brandywine Club will host the Doylestown Club Women. Old Boys kicks off at 11:00 at the West Marlborough home pitch of Brandywine. Directions can be found below. Please see our added news reports for summaries of previous year's events as well as directions to the pitch. While the overall fund-raising of the Foundation has now topped two hundred thousand dollars. Of that, over one hundred fifty two thousand donated to ALS research, with the balance supporting the Scholarship efforts into 2013.
Women, Union A's, Old Boys and League, there is something for everyone in the Scrum for Six. Hope to see you there.
Directions to Rugby Event - May 5th, 2007
The pitch is located on Howell Moore Road, off of route 926, in West Marlborough. Follow signs as you get close. Approximately 3 miles west of the University of Penn, New Bolton Vet Center on 926. Watch the 926 "zigzag" as you cross Newark Road. It is also about 5 miles from the Unionville High School.
Route 926 is accessable from route 842 in central West Chester, route 202 in Westtown, route 82 south from Coatesville, and route 162 west from Downingtown and route 10 in Cochranville.
Once you get to the "zigzag", follow the red and white Bartone Rugby signs.
Tuesday, April 11
Foundation Mourns Chair's Passing
It is with our deep regret that we recognize the passing of Charlie Forte, our Board Chair and founder. Uncle Charlie provided the guidance and consistency of cause throughout the four years that he steered our group. His leadership and direction established the foundation of our values, which continues to serve us in his physical absence.
Since we have a personal link to Uncle Charlie, there are a vast number of stories that we could tell which would provide examples of his true character. But, perhaps most fitting for the Foundation, is the story of one of his last public duties as Chairperson of the Golf Committee.
Not quite feeling up to himself in the days leading to the 2005 Golf Tournament, he requested that someone else plan to hit the ceremonial first tee shot that had been his honor since 2002. While we planned for a substitute only as a gesture, we felt strongly that we could hold that honor for his good health to return, and he would lead our golfers with a drive the next year. As that was announced on September 9th, 2005, Uncle Charlie strode onto the first tee at Arrowhead, drew upon his indomitable spirit, smiled that devilishly angelic smile, swiped the three wood from my hand, and laced a slight fade down the center of the fairway. It was perfect.
As it turns out, he won't be there to hit the tee shot in 2006. But like Michael, only physically missing. He'll be guiding us, motivating us, setting examples for us to follow, and inspiring us in the work that he started for years to come.
With four years of successful fund-raising, Michael Bartone Memorial now well established as an ally in the fight against ALS.
Now in the fourth year of fund-raising for research into the cause and cure of Amyotrophic Lateral Sclerosis, or ALS, and preserving its namesakes memory through an annual scholarship, the Michael Bartone Memorial Foundation continues to set new marks with each of our annual events. Results of the September 9th Golf Tournament and the September 10th Dinner Dance reached record levels for the fourth straight year. To date, we have raised over one hundred fifty thousand dollars in total. One hundred twelve thousand five hundred dollars have been donated to the ALS Associations Greater Philadelphia Chapter in support of research efforts and patient assistance. In addition, four local students have been awarded annual scholarships ranging from two thousand to three thousand five hundred dollars. The scholarship trust has funding to support seven more students.
Our group was formed in 2002, shortly after the death of local resident, Michael Bartone, who passed away during his fight with the affliction, also known as Lou Gehrigs Disease. Diagnosed in 1999, Michael fought gallantly until his death in March of 2002. ALS continues to affect approximately 5600 newly diagnosed patients in the U. S. each year. It is a fatally degenerative neuromuscular disease that attacks both the lower and upper motor neurons. Every ninety minutes a new patient is identified. It affects approximately 30,000 Americans at any given time. Twenty percent of those patients newly diagnosed die within three years of diagnosis.
The initial events orchestrated by the Foundation included a Golf Tournament and Dinner Dance in September of 2002. Later, a Rugby Event was added to the groups annual calendar, with the first taking place in May of 2003. The Michael Bartone 2006 Scrum for Six, as the Rugby Event is called, is again planned for May.
On September 9th, 2005, the fourth annual Michael Bartone Memorial Golf Tournament was held at Arrowhead Golf Club in Douglassville, Pennsylvania. Committee chair, Charlie Forte, continued his now four year tradition of splitting the first fairway with his ceremonial tee short to start things off. One hundred seventeen golfers, supported by twenty volunteers enjoyed the camaraderie, sunshine, beverages and food as they challenged the course and each other for over thirty prizes. Most of the awards, including two separate car packages and a three venue vacation offering, were donated by local businesses. Other prizes as well as trophies for the top six golfers were offered through contributions. Over one hundred ten local sponsors also donated funds, providing the majority of the over thirty two thousand dollars raised this year.
The next evening, the fourth annual Dinner Dance took place at Saint Anthonys Lodge in Downingtown, Pennsylvania. Over two hundred supporters gathered to celebrate Michael Bartones life, enjoy each others company, and raise money in support of the groups efforts. In addition to the success of the charitable fund raising, Michaels friends and family enjoyed food and beverages together and danced the night away. Keynote speakers also shared their views, reflected on Michaels life, and highlighted the accomplishments of the group to date. A silent auction, raffle tickets and sales of commemorative items rounded out the remaining revenue generating activities.
As she delivered her inspiration message, Michaels mother, Edie Bartone, commented on how lucky she considered herself and her family for having such supportive friends involved year after year. That is evidenced by the fact that both events continue to be sold out year after year and that over 70 of the 110 Sponsors have contributed every year since 2002.
Anyone wishing to learn more about ALS or the Michael Bartone Memorial Foundation, or donate, can write the Foundation at 474 West Prospect Avenue, Downingtown, Pennsylvania, 19335.
2005 Third Annual Scrum for Six Rugby
On May 14th, 2005, the Third Annual Michael Bartone Memorial, Scrum for Six Rugby Event will be played. Eight teams will make up the four match Event in a day that will preview both League and Union styles of play. In the Union matches, host Brandywine and South Jersey will square off in both Old Boy and A-side contests. For League representation, co-host Glen Mills will face Philadelphia and Media will play New Jersey. Eleven o'clock start time. Food and drink concessions will be on-site. Games for the children will enhance the family feeling of the day. Hosted at the home pitch of Brandywine Rugby Football Club in East Marlborough, Pennsylvania. Directions are available below.
Michael Bartone Memorial Rugby Event - 2005 Scrum for Six
On May 14th, 2005, the third annual Michael Bartone Scrum for Six Rugby Event was held at its customary venue, the home pitch of his club, Brandywine. The Scrum for Six, in recognition of the number Michael wore during his fourteen year career, continues to hold special meaning for the supporters as Rugby held a special meaning for him. Led by event coordinators, a core group from Brandywine RFC and co-host Glen Mills Bulls of the American National Rugby League worked together with the Foundation to orchestrate a day of Rugby. This years Scrum for Six raised a record fourteen thousand dollars. These funds allowed the Michael Bartone Memorial Foundation to donate eleven thousand dollars to the ALS Association, Greater Philadelphia Chapter, allocate one thousand five hundred dollars to the annual scholarship trust fund, as well as cover the operating and administrative expenses related to the event.
The Brandywine Old Boy team, most of who were teammates of Mikes, finally won a game in the Event after two years of near misses. Matched against the South Jersey Old Boys, Brandywine scored early and led for the entire match. A key try scored by Eric Dowson proved to be the difference. The Brandywine A side also won their match against South Jersey. Showing the playoff form they exhibited late in the season, the Brandywine Club scored multiple tries, led by Timmy Sheridan and Chris Vely.
Remaining one of the few venues in the world where Rugby Union and League styles are played on the same pitch, the League match pitted the Glen Mills Bulls against the Philadelphia Fight. A youth exhibition training game was also held, hoping to inspire the ruggers that will take the sport well into the future.
While the concession and admission provided a boost to the fund-raising, the primary driver of the record amount was Player Sponsorships. Over eighty-five players collected varying amounts from ten to one thousand one hundred dollars from over three hundred fifty contributors.
Michaels presence was felt throughout the day as friends and family shared old stories and took the chance to catch up with one another. Several key mates had the opportunity to reflect on their perspectives of Michael in interviews with the various media representatives that were there, including Fox News and the Downingtown Ledger. Kevin Reigel stated, You could trust him to do anything. In fact, if there was one word to describe Michael on the field it was that word: trust. Fred Gordon perhaps best summarized the most consistent recollection of Mike as quoted by the Ledger. The best way to sum it up was, he was the man. No matter how tired he was, he gave it his all.
It is with those key qualities of Michaels present in our thoughts that we continue to fight his battle with ALS. His battle is not lost unless we quit. Judging from the success of the Scrum for Six Rugby Event, there appears to be no quit in anyone involved.
Third Annual Golf and Dinner/Dance- over $110,000 raised
On September 10th and 11th 2004, The Michael Bartone Memorial Foundation held its Third Annual Golf Event and Dinner Dance. The group, organized following the passing of its namesake in March of 2002, has been dedicated to finding a cure for Amytrophic Lateral Sclerosis, or ALS, and preserving the memory of Michael Bartone while continuing his battle against the disease.
Including the proceeds from these events, the group has now raised over one hundred ten thousand dollars. While the event admission fees and other cash-generating activities are a part of the fund-raising, the cornerstone of their success is attributed to the over 130 local sponsors who generously contribute. Since the first event in 2002, they have donated over seventy five thousand dollars to their partner in the fight against ALS, the Greater Philadelphia Chapter of the ALS Association. The second annual three thousand five hundred dollar scholarship was awarded to a Downingtown High School student in May 2004, and an additional five years scholarship funding has been secured. Those amounts will continue to grow with this years activities that also include a Rugby Tournament held in May.
One hundred and sixteen golfers participated in the Golf Event, which was held at Arrowhead Golf Course in Douglassville, Pennsylvania on Friday the 10th of September. Committee Chair, Charlie Forte, laced his ceremonial drive down the center of the fairway on hole number one, proving his driving prowess remains intact. The players competed against the course for hole in one prize packages that included a car and three vacation packages that were donated by local businesses. The participants were treated to lunch and beverages also supplied by local sponsors. Over fifty prizes were awarded at a buffet dinner held at Saint Anthonys Lodge after the golfing was completed.
On Saturday September 11th, the Third Annual Dinner Dance was held, also at Saint Anthonys Lodge. Approximately two hundred fifty supporters enjoyed the keynote family speakers, a silent auction, many door prizes and exquisite cooking by Michaels mom Edie assisted by Luigi and Giovanni. Special guest speaker Jim Pinciotti, Executive Director of the ALS Chapter, thanked the group for their efforts, pledged the continued support of the ALS Association in fighting the disease and affirmed the importance of the Michael Bartone Foundation donation efforts in the overall battle against Lou Gehrigs. At the request of Gary Galvin, Mayor of Downingtown, Jim also read the proclamation declaring September 11, 2004 Michael Bartone day in Downingtown, recognizing the memory of Michael, the work of the group, and the participation of the local business sponsors.
ALS, or Lou Gehrigs disease affects a newly diagnosed 5,600 individuals in the United States each year. A new patient is diagnosed every ninety minutes. It is estimated that 30,000 Americans have the disease. It is a fatally degenerative neuromuscular disease that attacks both the lower and upper motor neurons. Twenty percent of the patients die within three years of their diagnosis. There is no known cause or cure. Anyone wishing to learn more about ALS or the Michael Bartone Memorial Foundation can write the Foundation at 474 West Prospect Avenue, Downingtown, Pennsylvania, 19335.
Additional $10,000 Donated to ALS Research
As a result of the Scrum for Six Rugby Event, an additional donation of $10,000 has been given to the Greater Philadelphia Chapter of the ALS Association. The Chapter supports patients, caregivers, and families affected by ALS and is the primary driver of research. This contributions brings the total donation by the Michael Bartone Memorial to $52,500.
Second Annual Rugby "Scrum for Six"
Michael Bartone participated in various levels of school and community sports for almost all of his unfairly shortened life. While there was exposure with boxing and wrestling, his experiences had mainly involved team sports. Consistent with his family values and his loyalty toward friends, a Teammate carried a special reverence. While active on the team, it means this is your ally, one who you would fight with against any other. After the season, to run into someone years later and still share the respect, to look over decades old pictures and even then put names to every face, to recall the uniform numbers of every individual, those are the telling examples of what it means to be a Teammate.
As his brother, I shared those same values with Mike. And so, shortly after he became involved with this sport of rugby and this Club, Brandywine, when he said to me, these are a good bunch of guys, I knew immediately the integrity of the sport and the quality caliber of the men who played it. We didnt needed extra adjectives, wasted words, or a lot of detail to communicate to each other. It was in his tone and by the simple taking of time to say it that I could tell this sport and these mates would be special to him. And they were then and continue to be now.
Rugby became a very special part of his life. It wasnt until seven years later that things began to change for Michael.
He thought that the tingling in his extremities was due to the many nerve-jarring tackles that he made during his football and rugby careers. Maybe they were related to the more tedious motions of his profession of plumber. As his character dictated, he played and worked through the pain, never complaining and continuing to perform at his customary high level. He continued to play rugby until his body would no longer allow. His visits to the pitch after that took all of his courage. It was in 1999 when Michael Bartone finally learned that what was happening to his body was due to Amyotrophic Lateral Sclerosis or ALS.
ALS, more commonly referred to as Lou Gehrigs Disease, affects approximately 30,000 Americans at any one time. 5600 new patients are diagnosed in the U. S. each year. It is a disease that attacks the Central Nervous System degrading the nerves that control muscle movement. Twenty percent of the patients die within three years of their diagnosis. There remains no known cause or cure.
Michael died in March 2002, during his battle with the disease. He fought until that time with the same spirit, dedication, dignity and fierceness with which he played rugby. Shortly after his death, a Memorial Foundation was formed to accomplish three key goals- carry on his battle with ALS, preserve his memory and continue his unselfish inspiration. His battle is not lost unless we quit, so we continue his fight.
While the main fund raising efforts center on an annual golf outing and dinner dance, each now celebrating their third year, the Annual Rugby Event has special meaning for the Foundation as rugby had special meaning for Michael. The second annual Rugby Event Scrum for Six, in recognition of the number that Michael wore, was held on May 22nd at the home pitch of the Brandywine Rugby Football Club in West Marlborough. Eight teams rounded out the four-match Event in a rare combination of Rugby League and Union styles of play.
Over 500 spectators enjoyed the day together. In the first match, the South Jersey Old Boys defeated the Brandywine Old Boys 22 17. While Brandywine controlled much of the game, inspired by an early try scored by Michaels close friend, Mark Joseph, the South Jersey team took the lead late in the game to prevail. The second Union match, between the Brandywine and South Jersey A-side teams, was won by Brandywine.
A partner in the Event is the American National Rugby League, which features a style of rugby more similar to American football than the traditional Union style. It is rare to see the two styles played together; no other venue features this mixture of styles on the same pitch and on the same day. The Connecticut Wildcats, New York Knights, Northern Raiders, and co-host, Glen Mills Bulls squared off in the final two matches of the day.
A key to the success of the Event was the generosity of sponsors, who contributed everything including the pitch itself, field maintenance, sand art and games for the children, food, beverages and water for the teams. In addition to the Board that has been established to manage the Foundation, a sub-committee organizing the Rugby Event had been working to coordinate the Scrum for Six since last December. The members of that committee, Joe Crescenz, Fred Gordon, Don Jefferies and David Niu coordinated all the administrative details from team scheduling and field setup to parking. Special thanks are offered to Dixon Stroud, George Supplee, Bob Muehlbach, H&H Nursery, Brandywine RFC, Glen Mills Bulls, American National Rugby League and Event founder, Ray OMalley.
As a result of the Event, an additional thirteen thousand dollars were raised to help to accomplish the goals stated earlier. The Foundation will be making another donation in support of ALS research, bringing the total contribution made in Michaels name over fifty thousand dollars. The balance of the proceeds support a memorial scholarship awarded annually to a local high school student who plans to attend a trade school. The second of those was coincidentally awarded on May 26th to a Downingtown West High School senior planning to attend Michaels alma mater, Thaddeus Stevens Technical School. The scholarship trust is funded through 2009.
Sponsors are currently being solicited for the Third Annual Michael Bartone Golf Tournament that will be held on September 10th. Anyone wishing to become a sponsor or learn more about ALS may contact the Michael Bartone Memorial Foundation at 474 West Prospect Avenue, Downingtown, Pennsylvania, 19335, or visit the website at www.eteamz.com/michaelbartonememorial/.
Golf and Dinner Dance Dates Set
The third annual Golf Tournament and Dinner Dance have been scheduled for Friday September 10th, and Saturday September 11th, 2004.
For the second year, the Golf Outing will be held at Arrowhead Golf Course, Douglassville, Pennsylvania. The Dinner Dance will be held at Saint Anthony's Lodge, Downingtown, Pennsylvania.
The format for the golf will be a shotgun start with prizes, beverages, lunch and dinner provided in part by our sponsors Chester County Rental, Mariano's Towne East Deli, Thorndale Beverage D'Ambrosio Dodge, General Sales, Marinelli and sons, and others. Big Daddy Rabbit will provide the music at the Dinner Dance supported by James Terry Funeral Home, Luigi and Giovanni will cook with Edie Bartone, Saint Anthony's Lodge will provide key event support. A silent auction will highlight the Dinner Dance.
Anyone interested in becoming a sponsor or an event supporter may call the Foundation at 610-518-1528.
Teams Set for Scrum for Six Rugby Event
Teams have been finalized for the second annual Scrum for Six Rugby Event to be held on Saturday May 22nd. South Jersey Old Boy and A side squads will take on the Brandywine Old Boys and A side in two separate matches. First match, the Old Boys, to start at 11:00 at the Brandywine home pitch in East Marlborough, Pennsylvania.
The Glen Mills Bulls, co-founders of the event with Brandywine, will match up against the Connecticut Wildcats.
This opportunity to witness this exciting combination of Union and League playing styles is truly worth spending a day at the pitch. Food, drinks, shirts and games for the children should make the day enjoyable for all family members.
2nd Annual Rugby Event-May 22nd, 2004
The date for this year's Rugby Event, Scrum for #6, has been set for Saturday May 22nd. This year an additional match has been scheduled that will now provide for Old Boy's and Union matches with the Brandywine Rugby Football Union Club and teams to be finalized, as well as the Glen Mills Bulls Rugby League Club in a match against an opponent also to be determined.
In 2003, the first ever mix of Union and League Rugby highlighted the first annual event. The weather held out for a fun filled day for players and spectators, young and old alike.
While associated with many sports and teams throughout his life, Rugby and the Brandywine RFC were both very special to him. As we have said on many occasions, "golf is golf, but Michael was Rugby". Food, beverages, souvenirs and other commemorative items will all be available at the pitch. Come out and enjoy a festive day highlighted by the fine play of all the teams as they compete in their respective category.
Teams and directions will be posted shortly.
$20,000 Donation to ALSA, Philadelphia Chapter
It is fitting that we post this news to you today, Michael's 40th birthday. On November 5th, 2003, the Memorial Committee presented a check for twenty thousand dollars to Jim Pinciotti, Executive Director, ALSA, Greater Philadelphia Chapter. In alignment with the Foundation goals, they directed that, while 20% of the amount could be used at the discretion of the Chapter, sixteen thousand dollars be utilized in support of research into the cure. Other areas that the Chapter supports through donations include Patient Services, Administration, and Operating Funds. Administration and Operations help support the many generous offerings of the Chapter such as caregiver seminars, updates on current medical information, service and support equipment demonstrations, and the many fine works of the caring people who support the cause without costs to those in need.
In presenting the donation, the Committee noted that the amount would only dent the high costs of today's medical research. However, ever guided by the no quit attitude of their namesake Michael, they noted that many dents will someday make a hole. In accepting Mr. Pinciotti noted, " I am humbled by the commitment and the dedication that you and the rest of your team bring... to the fight against this terrible disease." "I am renewed by your strength and determination, and I am sure we will win this fight."
In addition to the ALSA donation, an additional five thousand dollars were allocated to the scholarship fund, now financed through 2008.
Thanks to all the contributors, sponsors, supporters, volunteers, and others that made this year's events a success.
Memorial Holds Second Annual Events
On September 12th and 13th, The Michael Bartone Memorial Foundation held its Second Annual Golf Tournament and Dinner Dance. The group, organized following the passing of its namesake in March of 2002, remains dedicated to finding a cure for Amytrophic Lateral Sclerosis, or ALS, and preserving the memory of Michael Bartone.
As a result of last years inaugural events, the Foundation has already donated $22,000.00 to ALS research and presented a $3,500.00 scholarship to a Downingtown High School student in May. An additional two years of scholarship funding is already secured. They expect to exceed those amounts with this years activities that also include our Rugby Event held in May.
One hundred and twenty-four golfers participated in the Golf Event, which was held at Arrowhead Golf Course in Douglassville, Pennsylvania on Friday the 12th of September. Committee Chair, and longtime local golf and baseball legend, Charlie Forte laced his ceremonial drive down the center of the fairway on hole number one to start things off right. The participants were treated to lunch and beverages supplied by local sponsors. The rain held out for the event as players competed against the course for two separate car prizes and four Caribbean vacation packages that were also donated by local businesses. The winners in both the ladies and mens categories received prizes as well. Over thirty prizes were awarded at a buffet dinner held at Saint Anthonys Lodge after the golfing was completed.
Stated Michaels brother, Dominick Bartone, Weve had a great crowd for two years now. Last years golf had one hundred sixteen golfers participate. Unfortunately, we still have to turn people away. Michael had a lot of friends and there are many people who want to join us in this fight. As a Committee, we decided last year that, while we want to raise as much funding as we can in our fight against ALS and for our Scholarship, our events should also remain a celebration of Michaels life by those that were closest to him and the family. Besides being a charity event, most of the golfers feel like its a great tournament thats pretty well done. Its a real tribute to Mike. The Committee works very hard to pull it off.
On Saturday September 13th, the Second Annual Dinner Dance was held, also at Saint Anthonys Lodge. Over two hundred fifty supporters enjoyed the keynote family speakers, a silent auction, many door prizes and exquisite cooking by Michaels mom Edie assisted by Luigi and Giovanni. To paraphrase Michaels sister, Cammie, who spoke at the event,
if you ever saw Michael on the football field or the rugby pitch you know he was driven.
this group too is driven to preserve his memory and fight ALS.
Rugby Tournament-May 17th
As most of Michael's friends and family know, Michael was a dedicated Rugby player. His association with Brandywine Rugby Football Club held a special meaning for him. As we coordinate our two key annual events, we like to say, "golf is golf, but Michael was Rugby".
His inspiration for the team continues even today. The Bartone family has initiated an annual award to be presented to the member of the team that most typifies some of Michael's key characteristics.
In his fourteen-year rugby career, he consistently displayed a dedicated teammate ethic. His never quit mindset positioned him as a quiet leader through his example on the pitch. His solid tackling ability and disciplined play is probably best portrayed by one single simple fact. During his playing days, both the spring and fall seasons, no opposing eight- man ever scored out of the scrum. I am not a rugger, so while I may not fully appreciate the rarity of that fact, I know enough ruggers that are impressed. Let me say that again so you can fully appreciate the statement. During his twenty-eight seasons, no opposing eight-man ever scored a try out of the scrum. That was Michaels courage and inspiration.
On May 17th, 2003, the First Annual Michael Bartone Rugby Event was played on the home pitch of Michaels club, Brandywine. Four teams rounded out the two match Event with the Brandywine Rugby Football Club playing a special Old Boy team made up of former teammates of Michaels and key family members. In a rare combination of Union and League Rugby, the second match featured the Glen Mills Bulls in a League match. .
The Brandywine Old Boys played courageously and controlled the ball for most of the match. But even with a penalty kick and a try scored by Michaels long time friend, Ron Fuchs, the speed and conditioning of the younger Brandywine team prevailed. The shirts worn by the Old Boys were designed for the Memorial Event with special recognition of Michael and his number, six. The Glen Mills squad, led by David Nui, was the victor in the second match.
Key event organizers, in addition to the Bartone Memorial Board started the planning for the event in the fall of 2002. Ray O'Malley of Glen Mills fame, initiated the idea and worked long and hard to make the day a reality. David Nui, Don Jefferies, Fred Gordon and Mike Ievers, helped coordinate all the administrative details, key donations, team matchups and field setup. Proceeds from the day were used to support the three key goals of the Foundation.
The funds allowed the committee to contribute a $7500.00 donation to the ALS Society for research into a cure, and a $3000.00 deposit to the fund for an annual scholarship.
Second Major ALS Research Donation
On July 9th, 2003, the second donation to the ALS Association, Philadelphia Chapter was delivered by the Board.
As a result of the Rugby Event, seven thousand five hundred dollars were contributed in Michael's name for the purpose of finding a cure and supporting others with the disease.
Jim Pinciotti, Executive Director of the Chapter accepted the check and had the following words for the Board and all the sponsors. "I am so impressed with the caring people I met and the work you are doing. I truly meant everything I said last night, you are integral to the success of the Chapter - and we measure success by our performance in helping people with ALS."
Foundation Awards Scholarship
Continuing with our committments to our sponsors and consistent with the Charter for our Foundation, the first Annual Michael Bartone Scholarship was awarded at the Downingtown High School 2003 Awards ceremony. This years' three thousand five hundred dollar scholarship was presented to Mark Lewis, who will be attended Michael's alma mater, Thaddeus Stevens Technical School.
In presenting the award for the Foundation and the family, Michael's brother Dom noted Michael's tie to the community. "Downingtown student, Downingtown athelete, lifelong Downingtown resident and Downingtown business owner truly links Michael with the Borough and the school." Additionally, Dom focused on the guidance that Michael has already provided to young plumbing apprentices, one of whom was his son, Dominick. The Scholarship also recognizes that, had he lived longer, Michael would have touched many more lives in this fashion. This inspiration now comes in support of further education toward a Trade vocation.
In focusing on the three key goals for the Foundation- preserve his memory, kindle his unselfish inspiration and continue his fight with ALS- the scholarship helps preserve his memory within the community and is the cornerstone of kindling his inspiration.
Through our key fund-raising events and investment opportunities, the Scholarship is already funded through 2005. At a minimum,we hope to provide assitance through what would have been Michael's retirement year, 2025.
Downingtown students interested in applying for the Scholarship may contact the Downingtown High School Guidance Department.
2003 Golf Tournament and Dinner Dance
The Second Annual Michael Bartone Memorial Golf Tournament will be held this year on September 12th. This year's event is scheduled for Arrowhead Golf Course in Douglassville, Pennsylvania.
To clarify our sponsorships, our campaign starts with the Golf Tournament and entitles our sponsors the advertising and communication committments through to the following year's Golf event. We are now soliciting 2003-2004 sponsors.
The Dinner Dance, to be held at Saint Anthony's Lodge, will be on Saturday September 13th, 2003. Once again, we will be joined by Big Daddy Rabbit with a silent auction, exceptional food and a program of speakers.
While the golf is sold out, Dinner tickets may be purchased through any Foundation Board member.
Rugby Tournament May 17th
Well the date is set and the teams are coming together. While golf is golf, Michael is rugby. The First Annual Scrum for #6 Rugby Event will be held May 17th at noon on the Brandywine Club's home pitch in East Marlborough, Pennsylvania. Glen Mills Staff will play a yet to be finalized team in the second match. The lead match for the day will be the current Brandywine Rugby Football Club against the Old Boy Brandywine 15. Admission is five dollars; tee shirts, commemorative mugs, sandwiches, and drinks will all be sold at the pitch. Join us for a thrill packed day in support of a great cause. Parking is limited, carpool if you can.
Board Presents Research Support Check
As a result of the funds raised through the Dinner/Dance, Silent Auction, raffles, Golf Tournament and miscellaneous sponsorships, the goal of a substantial donation to support ALS research and the funding for the first two years of scholarship awards have been realized. The Finance Committee is currently reviewing investment opportunities to perpetuate the scholarship fund and maintain an operating expense account to support future events.
On November 20th, the Board presented the Greater Philadelphia Chapter of the ALS Association with a check for $15,000.00. Larry Green, of the Chapter, was on hand at Luigi and Giovanni's in Downingtown to accept the donation from the Board. A commemorative Wheaties box, with Lou Gehrig pictured, was presented by Mr. Green to Board Chairperson, Charlie Forte, for his dedicated efforts.
Memorial Dinner, huge success
Over 225 people attended the First Annual Dinner Dance at the Saint Anthony's Lodge in Downingtown. Keynote speakers included Charles Forte, Edith Bartone and Dominick Bartone. Raffle prizes and Silent Auction items, donated by generous sponsors, helped to raise over twenty thousand dollars. While the final accounting is still in process, it looks like the goal of a student scholarship, substantial donation to ALS Society, and funding for future events is now a reality.
Food supplied by Michael's mother, Edie and Luigi & Giovanni spiced up the occasion. Music by Big Daddy Rabbit created a feastive air as a celebration of Michael's life took place.
While the Golf Outing was postponed due to the storm, the dinner/dance was a huge success.
Look for our Rugby Event, coming in May 2003.
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