Dear Friends and Family,

It’s time for the 2009 Cystic Fibrosis Great Strides event!  This year we will be walking at Hofstra University on Saturday, May 30th, to raise funds to find a cure for CF and to fund the scientific research that develops treatments to keep CF patients healthy until a cure is found.

As many of you know, my 11 year old granddaughter, Shea Patricia McClosky, has Cystic Fibrosis.  She is growing and strong due to the wonderful treatment she receives from her CF specialist and the advancements in treatments for CF that are funded by events like Great Strides.  An example is a research study that Shea is currently participating in to determine if LYM-X-SORB, a new type of dietary supplement, is an acceptable and effective way to correct fat and choline (a fat-related nutrient) absorption in children with Cystic Fibrosis and pancreatic insufficiency.  She will take the LYM-X-SORB supplement every day over an 18 month period, and travel to The Children’s Hospital of Philadelphia several times to be tested. The photo on the web site is Shea and Megan, her nurse for her baseline visit to CHoP.

If you would like to help us this year, please click on this link to make a donation.  Or you can send a check made out to the Cystic Fibrosis Foundation and send it to me at work (Grace 6-14) or at my home: 25 Clark Avenue, Lynbrook, NY 11563.  And, if you would like to join us at Hofstra on May 30th, please give me a call and I will send you more information.

Thank you so much for your continued support!

Sharyn McClosky and Family